EUSTAR_org

🌍Join the Future of SSc Research! 🚨The #EUSTAR #YIG-#EULAR2025 SSc Highlights Broshure is here! 🚨 💡 Discover the most exciting breakthroughts in: ⏩ Fibroblast and immune cell phenotyping ⏩ILD treatments & AI driven diagnostics ⏩Cardiac & renal up-to-dates ⏩Insights from #EUSTAR registry & much #more! 💢 📢The must read SSc Broshure 👉https://lnkd.in/dbRx_83J ✨✨✨Chosen and written by our great #EUSTAR #YIG members! Credits going to⏩ Muriel Elhai, Noemí Franco Domingo, @Carlos Valera Ribera, @Kristina Clark, @Minrui Liang, Maria Iacovantuono, Cristiana Sieiro Santos, Margarida Lucas Rocha, Claudia Iannone, @Devis Benfaremo, Rahma Elziaty, @Radoslaw Dziedzic, Ana Rita Prata, @Elena Bianchi, Dr. med. Gesa Sauer,@Gehad Gamal Maghraby and @Beatrice Moccaldi. Edited and reviewed by Colic Jelena World Scleroderma Foundation

📢SSc Clinical Science Journal Club 💥 Hot news by Dr Hilde Jenssen Bjørkekjær , Department of Rheumatology, Hospital of Southern Norway, Kristiansand, Norway. 🎯 WIN- ♦️ZENITH trial♦️add-on sotatercept in high-risk PAH ⏩28% had CTD-PAH and subgroup results showed consistent benefit. A major step forward for CTD-PAH! Find out more 👇 https://lnkd.in/devhGjvB #EUSTAR #YIG

📢SSc Basic Science Journal Club 💥 Hot news by Dr Celina Geiss, University Hospital Zurich & University of Zurich (Zurich, Switzerland) 🎯 WIN- ♦️fibroblast-derived exosomes♦️ induce a type I IFN response in SSc keratinocytes⏩uncovering a novel tissue-level signalling axis and pointing to JAK inhibition as a potential intervention👀? Find out more 👇 https://lnkd.in/dC-BHnTm #EUSTAR #YIG

🚨 World Systemic Sclerosis day 🚨 🎯The commitment to support people living with SSc and reduce the burden of the disease is a crucial focus of ongoing efforts. This involves a multi-faceted approach and we are sure ⏩ together ✅ we can make it! #RiseAwarenes #World Scleroderma Foundation

📣 Save the Dates: Systemic Sclerosis World Congress 2026 – Athens 🇬🇷 We’re delighted to announce that preparations are underway for the SSc World Congress 2026, to be held in Athens, Greece. 🗓 Abstract Submission Deadline: September 1, 2025 🎟 Early Bird Registration Opens: January 8, 2026 Join global experts, researchers, and clinicians dedicated to systemic sclerosis for this landmark event in one of Europe’s most historic cities. Get ready to share your work, connect with the community, and shape the future of SSc research. 📍 Athens awaits — secure your participation! #SSc2026 #SystemicSclerosis #Scleroderma #MedicalResearch #Athens2026 #CallForAbstracts

🚨Today was a special day for the #EUSTAR🚨 🎯 A new #EUSTAR Board was elected 🎯 ✨ We wormly welcome on board: ♦️Prof. Marie-Elise Truchetet (President), ♦️Prof. @Masata Kuwana (Vice President), ♦️Prof. Francesco Del Galdo (Treasurer) 🟢 .Ivan Castellví Barranco (Counsellor) 🟢 Carina Mihai (Counsellor) 🟢Monique Hinchcliff (Counsellor) 🟢 elisabetta zanatta (Counsellor)

📊 Coming up this morning at #EULAR2025 – A must-attend Oral Abstract Session! 🗓️ Thursday, 12 June | 10:30 – 12:00 CEST 📍 Room 6.4 🧭 Session Title: Systemic Sclerosis – Insights from Registries into Clinical Manifestation and Disease Patterns This session features rich data from the EUSTAR cohort, offering critical insights into disease progression, phenotyping, and personalized risk profiling in systemic sclerosis. 🎓 Featured Presentations: 🔹 Stefano Di Donato “Clinically significant events are better early indicators of disease progression in SSc beyond ACR/EULAR criteria: Insights from the VEDOSS EUSTAR cohort” 🔹 Colic Jelena “Disease characteristics of anti-centromere positive SSc patients and risk factors for organ involvement: Data from the EUSTAR cohort” 🔹 Liala Moschetti “The clinical phenotype of anti-Th/To+ patients in SSc: A case-control study within the EUSTAR cohort” 🔹 Aslihan Avanoglu Guler “Clinical characteristics and risk factors for calcinosis cutis in SSc: Insights from the EUSTAR database” 🔹 Antonio Tonutti “Risk factors for cancer in SSc, impact on phenotype and prognosis, and proposal of ML-based personalized screening strategies: Insights from an EUSTAR study” Don't miss this essential session for anyone involved in registry-based research, risk stratification, and clinical decision-making in SSc. #EULAR2025 #SystemicSclerosis #Scleroderma #EUSTAR #ClinicalResearch #MedicalInnovation #Rheumatology #AIinMedicine #DiseasePatterns #WSF

📣 We’re live from Barcelona – #EULAR2025 has officially begun! 🇪🇸 📍 Find us at Booth O19, Hall 8.1 and be part of the future of scleroderma research with the World Scleroderma Foundation and EUSTAR_org. 🗓 June 11–15, 2025 Join us for: ✅ Scientific sessions on the latest in scleroderma research 🎥 Live expert interviews by EUSTAR Young Investigators 💬 In-depth discussions at the WSF Community Area 💡 Opportunities to apply for our Major Grant and Grant for Young Investigators – supporting tomorrow’s breakthroughs! Let’s collaborate, learn, and innovate together. Come by the booth for all the latest updates and insights! 🔗 Learn more: https://lnkd.in/d3v_-7WX #Scleroderma #EUSTAR #MedicalResearch #Grants #HealthcareInnovation #WSF #EULAR2025 EUSTAR_org

🎤 Spotlight on Prof. Yannick Allanore 🇫🇷 at #EULAR2025 in Barcelona! Join us today in Room D1 for the session: "Systemic sclerosis – How to manage difficult cases of common manifestations" ✨ Prof. Yannick Allanore will present: "Refractory Anemia in Systemic Sclerosis" Gain key insights into one of the more complex and persistent clinical challenges in SSc. This session will explore: 🔍 Diagnostic nuances of refractory anemia in SSc 🧬 Pathophysiological mechanisms involved 💊 Updated treatment approaches and clinical management strategies 📍 Location: Room D1 📅 Date: June 10, 2025 🕓 Time: Ongoing – don’t miss it! This is a valuable opportunity to deepen your understanding and optimize care for patients with challenging SSc manifestations. #EULAR2025 #Barcelona #Scleroderma #WorldSclerodermaFoundation #SystemicSclerosis #AutoimmuneDiseases #WSF #MedicalEducation

🎤 Don’t miss Prof. Michael Hughes 🇬🇧 speaking now at #EULAR2025 in Barcelona! 📍 Session: Systemic sclerosis – How to manage difficult cases of common manifestations 🗓 Today | Room D1 Dr. Hughes will present: "Provisional Expert Recommendations for the Management of Refractory Gastroesophageal Reflux Disease in Systemic Sclerosis" 📑 A report from the World Scleroderma Foundation (WSF) Gastrointestinal Ad Hoc Committee 🔍 This important session highlights: ✔️ Diagnostic challenges in severe GERD in SSc ✔️ Consensus-driven expert recommendations ✔️ Pharmacologic and lifestyle strategies tailored for complex cases ✔️ The collaborative effort of leading global experts under the WSF umbrella This is a vital opportunity to hear directly from the task force behind these new recommendations shaping future SSc GI care! #EULAR2025 #Barcelona #Scleroderma #WorldSclerodermaFoundation #SystemicSclerosis #GERD #GIHealth #WSF #ClinicalGuidelines