World Scleroderma Foundation

🌍Join the Future of SSc Research! 🚨The #EUSTAR #YIG-#EULAR2025 SSc Highlights Broshure is here! 🚨 💡 Discover the most exciting breakthroughts in: ⏩ Fibroblast and immune cell phenotyping ⏩ILD treatments & AI driven diagnostics ⏩Cardiac & renal up-to-dates ⏩Insights from #EUSTAR registry & much #more! 💢 📢The must read SSc Broshure 👉https://lnkd.in/dbRx_83J ✨✨✨Chosen and written by our great #EUSTAR #YIG members! Credits going to⏩ Muriel Elhai, Noemí Franco Domingo, @Carlos Valera Ribera, @Kristina Clark, @Minrui Liang, Maria Iacovantuono, Cristiana Sieiro Santos, Margarida Lucas Rocha, Claudia Iannone, @Devis Benfaremo, Rahma Elziaty, @Radoslaw Dziedzic, Ana Rita Prata, @Elena Bianchi, Dr. med. Gesa Sauer,@Gehad Gamal Maghraby and @Beatrice Moccaldi. Edited and reviewed by Colic Jelena World Scleroderma Foundation

🧬 EULAR 2025 may be over, but the conversations are just beginning. The World Scleroderma Foundation and EUSTAR_org Young Investigators proudly present 5 exclusive post-congress interviews with world-class researchers in systemic sclerosis (SSc). 🎙️ Topics explored include: Organ involvement in anti-centromere positive SSc Colic Jelena Nikolaos Vlachogiannis Human blood vessel organoids for vasculopathy modeling Alexandru-Emil Matei Annalisa Marino ILD, Emphysema & PH Screening (DETECT) Maria Iacovantuono Dr. med. Gesa Sauer Combination therapy in SSc-ILD Rahma Elziaty Vasoactive therapy & pulmonary hypertension Nicola Farina 💡 Gain fresh insights from the frontline of SSc research. 📺 Watch the interviews now: https://lnkd.in/d5SDCgxm #EULAR2025 #SScResearch #WorldSclerodermaFoundation #EUSTAR #Rheumatology #MedicalResearch

📢 July Literature Spotlight from WSF This month, our WSF Task Force Experts have selected three standout studies driving progress in scleroderma care: 🔹 AI-driven tool for Raynaud’s (Dr. Melis, Univ. of Florence) 🔹 Prokinetics for GI involvement in SSc (Dr. Benfaremo, Univ. of Ancona) 🔹 Long-term effects of selexipag in SSc ulcers (Dr. Campochiaro, Vita-Salute San Raffaele) 🧬 Explore them now on our Relevant Literature page: https://lnkd.in/d9Z-eQPQ And a reminder: 📣 Abstract submission for the 2025 SSc World Congress is open! 🗓 Deadline: September 1st, 2025 👉 Submit here : https://lnkd.in/duNCRDZq #Scleroderma #Raynauds #SystemicSclerosis #SSc2025 #MedicalResearch #DigitalHealth #Gastroenterology

📣 Save the Dates: Systemic Sclerosis World Congress 2026 – Athens 🇬🇷 We’re delighted to announce that preparations are underway for the SSc World Congress 2026, to be held in Athens, Greece. 🗓 Abstract Submission Deadline: September 1, 2025 🎟 Early Bird Registration Opens: January 8, 2026 Join global experts, researchers, and clinicians dedicated to systemic sclerosis for this landmark event in one of Europe’s most historic cities. Get ready to share your work, connect with the community, and shape the future of SSc research. 📍 Athens awaits — secure your participation! #SSc2026 #SystemicSclerosis #Scleroderma #MedicalResearch #Athens2026 #CallForAbstracts

🚨Today was a special day for the #EUSTAR🚨 🎯 A new #EUSTAR Board was elected 🎯 ✨ We wormly welcome on board: ♦️Prof. Marie-Elise Truchetet (President), ♦️Prof. @Masata Kuwana (Vice President), ♦️Prof. Francesco Del Galdo (Treasurer) 🟢 .Ivan Castellví Barranco (Counsellor) 🟢 Carina Mihai (Counsellor) 🟢Monique Hinchcliff (Counsellor) 🟢 elisabetta zanatta (Counsellor)

🗳️ EUSTAR_org Elections — Final Call! 🗳️ The voting booths are still open, but not for long — just 30 minutes left to make your voice heard! If you haven’t voted yet, this is your moment. Let’s shape the future together — the clock is ticking! ⏰ #EUSTARvotes #YourVoiceCounts

🔹 Day 3 at #EULAR2025 – Connections, Conversations & Commitment 🔹 What a rewarding day 3 in Barcelona!! The WSF/EUSTAR booth (#O19) has been a lively hub of exchange — uniting clinicians, researchers, and patient advocates dedicated to systemic sclerosis. 💬🤝 We’ve had rich discussions, promising ideas, and meaningful moments with colleagues from all over the world. There’s something special about seeing long-standing traditions blend with fresh perspectives. 🌍✨ If you haven’t passed by yet, we’d love to welcome you! Come visit us at booth #O19 — the conversations (and the company) are well worth it. 🫱🏼🫲🏻 Together, we're shaping the future of care — one conversation at a time. 💡 #WSF #EUSTAR #EULAR2025 #SystemicSclerosis #Rheumatology #StrongerTogether #MedicalCommunity #LegacyAndFuture

🤝 Meet the EULAR Expert – Prof. Marco Matucci-Cerinic 🇮🇹 🗓 Thursday, 12 June | Time 13:15 📍 Meet the Expert 2 Room | #EULAR2025 Join one of the world’s foremost experts in systemic sclerosis for an in-depth, interactive session: 🎓 Topic: Management of Vasculopathy in Systemic Sclerosis Prof. Prof. Marco Matucci Cerinic MD, PhD, FRCP, FBSRhon, FACR, FISR-Cerinic will guide a practical discussion on: 🔬 Pathophysiology and early identification of vasculopathy in SSc 💉 Latest evidence in pharmacological interventions 🩺 Best practices for clinical management 💡 Real-world strategies and patient case discussions An exceptional opportunity for hands-on insights and direct engagement with a leader in SSc care. Bring your questions and join the conversation! #EULAR2025 #SystemicSclerosis #Scleroderma #Vasculopathy #Rheumatology #WSF #MeetTheExpert #MedicalLeadership #SScCare 🐦

📊 Coming up this morning at #EULAR2025 – A must-attend Oral Abstract Session! 🗓️ Thursday, 12 June | 10:30 – 12:00 CEST 📍 Room 6.4 🧭 Session Title: Systemic Sclerosis – Insights from Registries into Clinical Manifestation and Disease Patterns This session features rich data from the EUSTAR cohort, offering critical insights into disease progression, phenotyping, and personalized risk profiling in systemic sclerosis. 🎓 Featured Presentations: 🔹 Stefano Di Donato “Clinically significant events are better early indicators of disease progression in SSc beyond ACR/EULAR criteria: Insights from the VEDOSS EUSTAR cohort” 🔹 Colic Jelena “Disease characteristics of anti-centromere positive SSc patients and risk factors for organ involvement: Data from the EUSTAR cohort” 🔹 Liala Moschetti “The clinical phenotype of anti-Th/To+ patients in SSc: A case-control study within the EUSTAR cohort” 🔹 Aslihan Avanoglu Guler “Clinical characteristics and risk factors for calcinosis cutis in SSc: Insights from the EUSTAR database” 🔹 Antonio Tonutti “Risk factors for cancer in SSc, impact on phenotype and prognosis, and proposal of ML-based personalized screening strategies: Insights from an EUSTAR study” Don't miss this essential session for anyone involved in registry-based research, risk stratification, and clinical decision-making in SSc. #EULAR2025 #SystemicSclerosis #Scleroderma #EUSTAR #ClinicalResearch #MedicalInnovation #Rheumatology #AIinMedicine #DiseasePatterns #WSF

🌞 Good morning from Barcelona – Day 2 of #EULAR2025 is underway! We’re thrilled to continue connecting, learning, and advancing systemic sclerosis research with our global community. 📍 Be sure to stop by Booth O19 in Hall 8.1 and explore all the exciting activities from the World Scleroderma Foundation today: 🎤 Expert-led scientific sessions 🎥 Live interviews by EUSTAR Young Investigators 💬 WSF Membership Area for networking & resources 💡 Learn how to apply for the WSF Major Grant or Grant for Young Investigators Keep an eye out for key sessions today covering diagnostics, lung disease, and fibrosis innovation. We’ll be highlighting them throughout the day! Let’s make today count – together we shape the future of SSc care and discovery. 🌍 #EULAR2025 #Barcelona #Scleroderma #SystemicSclerosis #WSF #MedicalResearch #HealthcareInnovation #Grants #EU