📣 Calling all GlobalSkin Members in the African Region! Join us tonight for the exclusive Regional African Network webinar: 🎙️ "Amplifying Your Voice Using Social Media" 🗓️ Thursday, July 17, 2025 🕖 7:00 PM CAT Discover how to harness the power of social media to share your message with impact! Learn how to: ✅ Create meaningful content ✅ Use tools like Canva and ChatGPT ✅ Grow your presence and connect with your community 📩 Check your email and the ARN WhatsApp group for your registration link.
GlobalSkin - International Alliance of Dermatology Patient Organizations
Wellness and Fitness Services
Ottawa, ON 2,852 followers
A Global Alliance Serving Patient Organizations to Improve the Lives of Dermatology Patients Worldwide.
About us
The International Alliance of Dermatology Patient Organizations (also known as GlobalSkin) envisions a world in which people living with dermatological diseases and skin traumas can easily access the care and treatment they need, when they need it, and can live without stigmatization, persecution, or economic disadvantages due to their conditions. GlobalSkin is a not-for-profit organization working with more than 165 patient association members ─ located in over 50 countries representing more than 60 disease areas ─ to improve the lives of those affected by dermatological conditions throughout the world by: - Initiating dialogue and advocating for access to new and existing treatments, and dermatological care to improve patients’ quality of life; - Raising the awareness of the incidence of, and the challenges for, people living with serious dermatological diseases to create better understanding; - Supporting our Members, not-for-profit dermatology patient organizations, through education, global campaigning, sharing of best-practices and beneficial networking opportunities to strengthen support for patients and build a strong, inclusive movement; - Building special focus communities; and conducting patient–initiated research. We appeal as one voice to the World Health Organization and other key influencers to recognize the debilitating nature of dermatological disease so that more resources for research and treatment options are made readily available to those afflicted and in need of help. The common thread through these important initiatives is credible data, which we will collect in the first-ever global patient-initiated 'impact of skin disease’ research project, expected to have a profound and lasting impact on key decision-makers. By collecting data from the dermatology patient perspective to represent various real-life conditions around the world, the dermatological community will gain better awareness, making it easier to truly help patients.
- Website
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https://www.globalskin.org
External link for GlobalSkin - International Alliance of Dermatology Patient Organizations
- Industry
- Wellness and Fitness Services
- Company size
- 2-10 employees
- Headquarters
- Ottawa, ON
- Type
- Nonprofit
- Founded
- 2015
- Specialties
- Skin Health, Dermatology Patient Alliance, patient organization, advocacy, dermatology, skin disease, eczema, psoriasis, vitiligo, skin cancer, rare disease, acne, Hidradenitis suppurativa, albinism, birthmark, Pemphigus & Pemphigoid , Alopecia , XERODERMA PIGMENTOSUM, and Epidermolysis Bullosa
Locations
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Primary
Get directions
43 Florence Street
Ottawa, ON K2P 0W6, CA
Employees at GlobalSkin - International Alliance of Dermatology Patient Organizations
Updates
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This October, GlobalSkin will be present at #ISAD2025 in Melbourne — a premier event in #AtopicDermatitis research. We'll showcase member impact at our booth, host our Skin Matters Reception connecting patients, clinicians, and researchers, and organize an informal planning meeting to explore future initiatives in the Atopic Dermatitis space. GlobalSkin will also support a select number of active community members to attend the event. Stay tuned for more updates! #SkinMatters #PatientAdvocacy #GlobalSkin #Dermatology
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📣 REMINDER To All GlobalSkin Members! We want to hear from you! Help shape the future of our programming by completing the 2025 Member Survey 📝 Your insights will guide our work and track progress since 2023. ⏰Deadline: One response per org by July 31, 2025. 🔗 Check your inbox for the link! #GlobalSkin #MemberVoice #PatientAdvocacy #GlobalSkinMembers
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🌟 #FollowFriday Spotlight 🌟 This week, we’re highlighting “Association France Prurigo Nodulaire” — an organization devoted to providing information, support, therapeutic education, advocacy, and funding research for people affected by #prurigonodulaire. ✨ Why Follow This Organization? ➡️ Receive reliable info, emotional support, and contact networks for those living with prurigo nodulaire (and their caregivers) ➡️ Access therapeutic education and training tailored to this chronic, inflammatory skin condition ➡️ Stay up to date on latest diagnosis, treatment advances, and research—and help fund clinical programs 🌐 Learn more and show your support at https://lnkd.in/eV4hci2E 📸 Follow them on Instagram: https://lnkd.in/e8cMnZuu 👍 Follow them on Facebook: https://lnkd.in/eF5unswg #WPD2025 #Dermatology #PrurigoNodularis #PrurigoAwareness #ChronicPrurigo
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✨ Happy World Skin Health Day! ✨ On July 8, join the global movement advocating for awareness, education, and equal access to dermatological care for EVERYONE, everywhere 🌍with this year's theme, "No Health Without Skin Health." 📣 Take part: ✅ Use hashtags #SkinHealthForAll and #WSHD2025 and tag @worldskinday ✅ Use free tools: social media graphics, posters, Zoom backgrounds and more 👉 Call to action: Together, we can raise skin health awareness, reduce disparities, and empower individuals worldwide. Let’s highlight the theme: “No Health Without Skin Health”—Join the conversation and help make dermatological care accessible for all! https://worldskinday.org/ #WorldSkinHealthDay #SkinHealthForAll #WSHD2025
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GlobalSkin-Europe Members are reminded to join us for an informal virtual Coffee Chat on July 9, 13:00–14:00 CET. It’s a great chance to reconnect, hear what others are working on, and discuss advocacy efforts across the region. Registration details are in your inbox – we hope to see you there! #GlobalSkin #Europe #Dermatology #Advocacy #CoffeeChat #PatientVoice
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GlobalSkin - International Alliance of Dermatology Patient Organizations reposted this
Founder of Health-Focused Online Media Channels | Bridging Communication and Innovation | PR Expert | Crisis Communications Specialist
Skin diseases affect more than 2 billion people worldwide, yet they’ve long been left out of national and global health priorities. That changed at the 78th World Health Assembly, where Member States adopted a resolution recognising skin diseases as a public health priority. In this interview for Healthy.mt, Jennifer Austin, CEO of the GlobalSkin - International Alliance of Dermatology Patient Organizations, explains why this resolution matters and what it could mean for people living with skin conditions around the world. https://lnkd.in/dmi3vAyt
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🤎 With deep gratitude, we thank our outgoing Board Members: 🖋️ Michelle Capon, GlobalSkin Secretary (2019-2025) – for her dedicated leadership and unwavering support of our mission. 🕊️ Tran Hong Truong, GlobalSkin Board Director (2022-2025) – whose recent passing is a profound loss to our community. We honor his passionate advocacy, bright spirit and lasting impact. Their service has helped shape GlobalSkin into the strong, united alliance it is today. #GlobalSkinMembers #GlobalSkinLeadership #GlobalSkin
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📣 GlobalSkin Members: We want to hear from you! Help shape the future of our programming by completing the 2025 Member Survey!📝 Your insights will guide our work and track progress since 2023. ⏰Deadline: One response per org by July 31, 2025. 🔗 Check your inbox for the link! #GlobalSkin #GlobalSkinMembers #MemberVoice #PatientAdvocacy
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Thank you to all Full GlobalSkin Members for voting in the 2025 Board of Directors election. The Board convened earlier this week and has selected its Executive Committee for 2025–2026, with Marc Yale as President, Maya Tulpule as Vice President, Murray Turner as Treasurer, and Tina Mesarič as Secretary. GlobalSkin would also like to extend a warm welcome to its newest Board Directors, Gaone Tlhong Matewa (Beyond Vitiligo South Africa), Rowena Lou Sia- Ortiz (Scleroderma Awareness Philippines), and Christina Raj (Center for Ichthyosis Related Members Foundation India). We remain grateful to all Board Directors for sharing their time and expertise with our organization. Learn more about our Board Directors here: https://lnkd.in/gSUhBfG4 #GlobalSkin #Leadership #Governance #OrganizationalExcellence #Election #Results #ExecutiveCommittee
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